an actual or potential situation in which something that is valued is changed, no longer available, or gone
types of loss
actual loss
a loss that can be identified by others
e.g., loss of the ability to move legs due to paralysis
perceived loss
a loss that is perceived by one person but cannot be verified by another
e.g., loss of financial independence when a woman leaves employment to care for her child at home
anticipatory loss
a loss that is experienced before the loss really occurs
e.g., anticipation of the loss of a foot due to gangrene toes
categories of loss
loss of external objects
e.g., loss of a home in a fire
loss of a known environment
e.g., a 6-year-old boy losing spending most of his day in his home environment when he begins attending kindergarten
loss of significant others
e.g., a wife losing her husband
loss of an aspect of self
e.g., a paraplegic man losing the function of his legs
loss of life
Grief
grief
the totality of the subjective response and behavioral process experienced related to a loss
bereavement is the subjective response experienced related to a loss
mourning is the behavioral process experienced related to a loss
mourning is often influenced by culture, religious experience, and custom
e.g., a widow wears black at a funeral, Irish have wakes after a funeral
types of grief reactions
conventional
abbreviated
a grief reaction that is brief, but genuinely felt
anticipatory
a grief reaction that is experienced in advance of a loss
dysfunctional
unresolved
a grief reaction that is extended in length and severity
inhibited
a grief reaction in which many of the normal symptoms of grief are suppressed
stages of grief reactions
Engel (1964)
shock and disbelief
the survivor either refuses to accept the loss or demonstrates intellectual acceptance of the loss but denies the emotional impact
developing awareness
the survivor becomes consciously aware of the reality and meaning of the loss
restitution
the survivor performs the work of mourning, which is accomplished by observing rituals dictated by religion and/or culture
resolving the loss
the survivor focuses energy on thoughts of the deceased
idealization
the survivor represses all negative feelings toward the decreased and, then, through identification, incorporates certain characteristics of the deceased into his or her own personality
outcome
the survivor diminishes psychological dependence on the deceased and becomes interested in developing new relationships
Kubler-Ross (1969)
denial
the individual refuses to believe that the loss is happening
serves as a buffer in helping the client mobilize defenses to cope with the situation
anger
the individual resists the loss
anger, behaviorally described as "acting out", is often directed at family and health care providers
bargaining
the individual attempts to postpone the reality of the loss
serves as a plea for an extension of life or the chance to "make everything right"
depression
the individual realizes the full impact of the loss
serves as the preparation for the impending loss by working through the struggle of separation
acceptance
the individual comes to term with the loss
serves as a form of detachment exemplified by a void of emotion or interest in worldly activities
signs of grief
repeated somatic distress
tightness in the chest
choking or shortness of breath
sighing
empty feeling in the abdomen
loss of muscular control
uncontrolled trembling
loss of appetite
sleep disturbance
intense subjective distress
common interventions for grieving clients
plan time to be available for the client
listen to the clients grieving process
utilize therapeutic communication skills
utilize attentive listening skills
respect racial, cultural, religious, and personal values of the client and significant others in their expressions of grief
assure the client that intense feelings and reactions are normal initially
provide information about the grieving process and what to expect
encourage the client to express grief with significant others
acknowledge significant others in their own grief and desire to help the client
encourage the development of new relationships
encourage the client to explore available resources
encourage the client to explore support groups for individuals who have experienced a similar loss
assess client well-being
suggest that the client resume normal activities on a schedule that promotes physical and psychologic health
Dying and death
stages of dying and death
Kubler-Ross (1969)
denial
the individual refuses to believe the reality of his/her eventual death
anger
the individual resists his/her eventual death
bargaining
the individual attempts to postpone the reality of his/her eventual death
depression
the individual realizes the full impact of his/her eventual death
acceptance
the individual comes to term with the reality of his/her eventual death
signs of impending death
loss of muscle tone, e.g.:
relaxation of facial muscles
difficulty speaking
difficulty swallowing
gradual loss of the gag reflex
decreased activity of the gastrointestinal tract
possible urinary and rectal incontinence
diminished body movement
slowing of circulation, e.g.:
diminished sensation
mottling and cyanosis of extremities
cold skin
changes in vital signs, e.g.:
decelerated and weaker pulse
decreased blood pressure
rapid, shallow, irregular, or abnormally slow respirations
Cheyne-Stokes respirations
death rattle
sensory impairment, e.g.:
blurred vision
impaired senses of taste and smell
definitions of death
heart-lung death
the irreversible cessation of spontaneous respiration and circulation
emerged from the historical idea that the flow of body fluids was essential for life
manifestations of heart-lung death:
no spontaneous respirations
no spontaneous heart beat
whole brain death
the irreversible cessation of all functions of the entire brain, including the brain stem
emerged in the 1960s from the belief that neocortical functioning is the key to the definition of a human being
manifestations of whole brain death:
unreceptive and unresponsive to external stimuli
no muscular movement
no spontaneous respirations
no relfexes
flat electroencephalogram (EEG) for 24 hours
no circulation to or within the brain evidenced by Doppler ultrasound for 24 hours
positive apnea test
apnea when off the respirator for four minutes with a PaCO2 of at least 60 mm Hg
higher brain death
the irreversible loss of all "higher" brain functions, of cognitive function
emerged in the 1970s from the belief that the brain is more important than the spinal cord and that the critical functions are the individuals personality, conscious life, uniqueness, capacity for remembering, judging, reasoning, acting, enjoying, and worrying
changes in the body after death
rigor mortis
stiffening of the body
occurs about 2 - 4 hours after death
algor mortis
gradual decrease of body temperature after death
body temperature falls about 1° C (1.8° F) per hour until it reaches room temperature
livor mortis
discoloration of the skin due to breakdown of red blood cells and release of their hemoglobin
appears in the lowermost, or dependent, areas of the body
Factors influencing loss, grief, death, and dying
developmental state
e.g., a 4-year girl, who would typically believe that death is reversible, may assume that her dead grandfather will "wake-up" and come back to life
significance of the loss
e.g., a woman may view menopause not as a loss, but as providing more sexual spontaneity due to freedom from unplanned pregnancies
culture
e.g., in Western society, the prevalent attitude seems to be to view loss and death as dreaded enemies to be fought and postponed
spiritual beliefs
e.g., in the Jewish religion, family and friends sit Shiva with the survivors and the survivors unwrap the deceaseds headstone one year after burial (Jarhzeit)
sex-role
e.g., men are socialized to "be strong" and show very little emotion during grief
socioeconomic status
e.g., a wife, whose husband has an adequate pension plan or insurance, will have more options for coping with widowhood
cause of death
e.g., a gay mans mother and father may view their sons death as a the result of acquired immunodeficiency syndrome (AIDS) as punishment for his homosexuality
Common interventions for dying clients
develop a trusting nurse-client relationship with client and significant others
explain the clients condition and treatment to both the client and significant others
if desired, teach clients significant others how to assist in his/her care
meet physiologic needs of dying clients
provide personal hygiene measures, e.g.:
mouth care
clean, dry, wrinkle-free linen
frequent changes of gown if diaphoretic
relieve respiratory difficulties, e.g.:
Fowlers position
pharyngeal suctioning
oxygen as needed
assist with movement, nutrition, hydration, and elimination, e.g.:
frequent changes of position
antiemetics to stimulate appetite
encourage fluids
skin care if incontinent
provide measures related to sensory changes, e.g.:
touch
speak clearly and do not whisper (hearing is the last to go)
brightly lit room
relieve pain, e.g.:
provide pharmacologic, nonpharmocologic, and/or cognitive-behavioral pain management
meet spiritual needs of dying clients
if comfortable, a nurse can directly provide spiritual care for the dying client
e.g., pray with the client, read scripture with the client, meditate with the client
if uncomfortable, a nurse should arrange access to individual(s) who can provide spiritual care for the dying client
e.g., priest, minister, rabbi
meet pyschologic needs of dying clients
prevent loss of control and dependency
encourage the client to make as many decisions as possible about his/her care
prevent social isolation, e.g.:
help the client maintain involvement in established, significant relationships
provide meaningful environmental stimulation
encourage significant others to stay in communication through caring, silence, touch, and telling the client of their love
life review and framing memories, e.g.:
encourage the client and significant others to talk about past accomplishments, pleasures, and hardships
ask the client to give significant others meaningful information to pass on to future generations
have significant others share with the client what he/she means to them and their future aspirations
guided imagery, e.g.:
self-chosen or instructor-suggested images of the hospital room as a safe, comfortable place to die
death as a state of eternal peace
heaven as a garden of flowers eternally in bloom
final wishes and saying good-bye, e.g.:
preferences for the funeral
burial arrangements
wish to offer body to science or organs for transplantation
meet needs of the significant others of dying clients
listening to significant others concerns, e.g.:
utilize therapeutic communication skills
utilize attentive listening skills
remind significant others to care for themselves, e.g.:
get rest
eat nutritiously
prepare significant others for the reality of death, e.g.:
explain the signs of impending death
explain changes in the body after death
explain the grieving process
provide postmortem care
care of the clients body
remove or cut all tubes and lines according to health care agency policy
close the clients eyes
replace dentures or other dental appliances, if worn
straighten the client and lower the bed to a flat position
place a pillow under the clients head
wash the client if needed, honoring any religious or cultural rituals
comb and arrange the clients hair
place pads under the clients hips and around the perineum to absorb feces and urine
clean up the clients room or unit
prepare the client for transfer to either a morgue or funeral home
wrap the client in a shroud
attach identification tags per agency policy
care of the clients significant others
listening to significant others grieving process
utilize therapeutic communication skills
utilize active listening skills
if desired, allow significant others to see the body in private and perform any religious or cultural custom they wish
provide a private place for significant others to begin the grieving process
if requested, notify the hospital chaplain or appropriate community religious leader
care of other clients
listening to other clients grieving processes who were aware of the death of the client
care of other nurses
listening to other nurses grieving processes who were involved in the clients care
hospice care
focuses on support of the dying client and family with the goal of facilitating a peaceful and dignified death
based on holistic concepts that emphasize care to improve the quality of remaining life rather than cure
four key features of hospice:
interdisciplinary team
inclusion of family as defined by the client
pain management and symptom control, or palliation (lessening)